When I read the heart-breaking story about Bobby and Elisa Seeger’s little boy Aidan a few days ago, I cried. Aidan is a sweet, adorable, 7 year old boy with huge blue eyes; he is described by family & friends as having a contagious smile and being full of personality and laughter.
Aidan was recently diagnosed with ALD (adrenoleukodystrophy), a rare, genetic, and rapid moving brain disorder that destroys nerve cells. As it progresses, this life threatening disease presents many debilitating symptoms, and can lead to death within a few years. As you would imagine, they are very devastated. But they don’t need my tears or yours. With a campaign already underway dubbed “Aidan has a Posse”; this family is not ready to give up. Aidan is in a fight for his life and he needs our help now!
A doctor at the University of Minnesota has agreed to do an experimental treatment that would include chemotherapy, radiation and hopefully a bone-marrow transplant. The Seeger’s are hoping and praying for a match for Aidan. To find out if you are a match, please go to www.marrow.org and look for a drive or center near you. You can also request a mail-in kit, which is a painless cheek swab exam.
As you can imagine, Aidan’s treatments are quite expensive.
Long time family friends, Rock band Buckcherry, quickly put together a Benefit Concert in Aidan’s back yard, Brooklyn, New York, to raise both awareness and financial support for the upcoming battle Aidan will be facing.
The night will be hosted by comedian Jim Florentine and will also include a silent auction with works from famed street artists Shepard Fairey, Ewok, DickChicken, and motorcycles from Indian Larry among others.
The intimate event will be held at the Music Hall of Williamsburg (Brooklyn), New York, on August 11, 2011.
VIP tickets are $150 and include meet-and-greets with BUCKCHERRY & friends along with priority seating.
Regular tickets are available for $25.
|To purchase tickets go to: www.musichallofwilliamsburg.com/event/51541/?utm_source=fb1&utm_medium=shr
All Net proceeds will go to Aidan Seeger’s medical bills.Anyone who reads TonisNightOut.com on a regular basis knows that a midst the fun is always an underlying running theme, calling people to action to be better, to find their purpose, and to help others. Well, now is your chance to do just that; to make a difference and to possibly save this little boys life. We have hope & believe there is a match out there for Aidan, please join his posse and help us find out if it’s you!
To find out how else you can help, or to keep up with Aidan’s progress, go to the web site that has been set up for him: www.aidanhasaposse.org or you can become part of his Facebook group: www.facebook.com/groups/aidanjackseeger.